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CF Warriors

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Training w CF

I am a 50 yo woman with CF. I am on Trikafta which has improved my exercise tolerance substantially. I still struggle with stamina and building resilience. If anyone has tips for building the body to do hard hikes, races, etc I would be grateful.

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sistalokek
6月04日

Aloha, I too atruggle with this. My CF pulmonologist was the trikafta trial lead and he highly recommended to drink lots of water. I notice a big difference when I do and don’t, hope that helps

Fitness Fibrosis
February 12, 2026 · updated the description of the group.

CF Warrior Foundation – Private CF Warrior Community

This space is for those living with cystic fibrosis.

Not parents.Not clinicians.Not observers.

Just us.

If you have CF — whether you’re 18 or 58, post-transplant, on Trikafta, navigating CFRD, rebuilding strength, or simply trying to get through today — this is your room.

This is a place to speak freely about:

• treatments and compliance• exhaustion and discipline• movement and lung function• nutrition, insulin, enzymes• transplant fear• identity beyond diagnosis• fatherhood, motherhood, relationships• the hard days• the strong days

No toxic positivity.No pretending.No comparison.

We don’t compete here.We build each other.

This is a space for practical strategy, shared experience, and real conversations about living with CF — physically and mentally.

You don’t have to explain yourself here.You don’t have to minimize your reality.You don’t have to perform strength.

You are already a CF Warrior.

Welcome.

— Tim Sweeney

Founder, Co-Founder, CF Warrior Foundation

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Welcome to our group CF Warriors! A space for us to connect and share with each other. Start by posting your thoughts, sharing media, or creating a poll.

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